For my second neuro note,
I chose to watch a YouTube video called “Alex Coriells’ Journey with ALS.” The
reason I chose to watch this video is because I wanted to learn more about this
disease. This video is a tribute made by Alex’s wife showing the progression of
his disease and how he was affected. Alex was diagnosed with ALS is January of
2013 and passed away roughly 3 years later in November of 2015. About eight
months after his diagnosis, he required a feeding tube to eat. A few short months
after losing his ability to eat and swallow, he lost his ability to walk. He
relied heavily on his wife to be his caregiver, while also caring for their
three sons. Alex’s family was very important to him and was a reason to find
joy in the remainder of his ever-evolving new life. Also, Alex had strong faith
in Jesus and believed in his plan. Throughout
his progression, he was able to talk but required assistive technology to be
better understood. Alex was able to use his nose for a while but eventually had
to switch to the use of his eyes. I think it is amazing there is technology in
our day in age that allows communication using body parts other than mouths and
hands. Once Alex lost the ability to walk, he had to switch to a wheelchair. I
loved how the video was not all sad aspects of his life. For example, parts of
the video showed Alex and his three children riding on his wheelchair while
going into a store. One thing about ALS that sets it apart from other diseases how
it hardly affects cognition. This means that the person’s body is slowing
shutting down, but they are fully aware of what is going on and are essentially
helpless. Because cognition is barely affected, mental health is a big part of
this disease. It is important a person with ALS can hold onto hope and joy, so
they do not stoop into a dark depression. Alex did a good job of not becoming too
depressed by finding joy in his family and activities like sports. I could tell
that he was a great husband and father and is truly missed by his family.
However, he is in a better place and no longer in pain.
Currently, we are learning about this disease in our neuro class. After watching this video, I feel that I have a better understanding of the disease because I was able to see how it affected an actual person. Although this video did not have many facts about the disease, it was beneficial to watch because observation is essential in learning. Personally, I am a visual learner and benefit more from seeing a person with a disease than learning about it through reading. I would recommend this video to people to watch because it is informative and a sweet tribute. The video is somewhat of a tear jerker, but in a positive way because it showed the good in Alex’s life as opposed to the bad.
Henderson, W. (2018, February 03). Alex Coriell's Journey With ALS. Retrieved August 13, 2019,
from https://alsnewstoday.com/2018/02/01/alex-coriells-journey-with als/?utm_source=ALSNews&utm_campaign=856209f0b7RSS_FRIDAY_EMAIL_CA PAIGN&utm_medium=email&utmterm=0_0593028b75-856209f0b7-71721017
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